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National Organization for Rare Disorders
Results: 62

#	Item
11	The LINK Canadian Organization for Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2009-04-01 16:11:41 Canadian Organization for Rare Disorders Lipid storage disorders European Organization for Rare Diseases Fabry disease Orphan drug National Organization for Rare Disorders Lysosomal storage disease Orphan Drug Act Medical genetics Medicine Health Rare diseases
12	July 25, 2013 The Honorable Max Baucus, Chairman U.S. Senate Committee on Finance 219 Dirksen Senate Office Building Washington, D.C[removed] Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-07-31 09:14:47 Drug discovery Orphan drug Pharmaceuticals policy Rare disease Orphan Drug Act Pharmaceutical industry National Organization for Rare Disorders Max Baucus Food and Drug Administration Pharmaceutical sciences Health Pharmacology
13	The National Organization for Rare Disorders NORD Guides for Physicians #12 The Physician’s Guide to Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Rare diseases Genodermatoses Congenital disorders Treacher Collins syndrome Cleft lip and palate Craniofacial team Craniofacial surgery Micrognathism Malpuech facial clefting syndrome Health Syndromes Medicine
14	August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-09-26 15:14:25 Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health Drug discovery Orphan drug
15	News from Nord An update for our members and friends SUMMER[removed]NORD Hails FDA Safety Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Food and Drug Administration Pharmacology Pharmaceuticals policy Epidemiology Drug discovery Rare Disease Day Rare disease Prescription Drug User Fee Act National Organization for Rare Disorders Health Medicine Pharmaceutical sciences
16	The National Organization for Rare Disorders Nord Guides for Physicians #10 Physician’s Guide Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Medicine Angioedema Hereditary angioedema C1-inhibitor Ecallantide Hae Bradykinin Aspirin ACE inhibitor Complement deficiency Chemistry Health
17	National Organization for Rare Disorders Remarks before the FDA Endocrinologic and Metabolic Drugs Advisory Committee Silver Spring, Maryland November 19, 2013 Good afternoon. My name is Diane Edquist Dorman, Vice Presid Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-11-22 12:36:21 Rare diseases Drug discovery Orphan drug Pharmaceuticals policy Morquio syndrome Pharmaceutical industry BioMarin Pharmaceutical Mucopolysaccharidosis National Organization for Rare Disorders Health Pharmaceutical sciences Medicine
18	News from Nord An update for our members and friends Fall[removed]Alone We Are Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Pharmaceutical sciences Drug discovery Pharmacology Rare Disease Day European Organization for Rare Diseases Rare disease Prescription Drug User Fee Act Orphan drug National Organization for Rare Disorders Health Medicine Pharmaceuticals policy
19	August 6, 2013 The Honorable Jim Gerlach 2442 Rayburn House Office Building Washington, DC[removed]Dear Mr. Gerlach: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 known rar Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-09-26 15:15:11 Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health Drug discovery Orphan drug
20	November 22, 2013 The Honorable Patty Murray, Co-Chair The Budget Conference Committee 154 Russell Senate Office Building Washington, DC 20510 Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-12-06 10:56:30 Pharmacology Drug discovery Rare diseases Epidemiology Orphan drug Orphan Drug Act Niemann–Pick disease National Organization for Rare Disorders Foundation Fighting Blindness Health Pharmaceutical sciences Medicine

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